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Entanglements of Rare Diseases in the Baltic Sea Region
Authors:
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Publisher:
2023
Summary
Although rare diseases have captured public attention in recent decades, the lived experiences of people affected by these conditions remain on the periphery of medical anthropological inquiry. Focusing on Poland, Finland, and Sweden, and foregrounding notions of “rare” or “chronic” disease as an embedded category, this book critically analyzes entanglements between people and families with rare diseases and care practices that involve local healthcare policies, practitioners, and treatment modalities. Drawing on locally grounded case studies, Entanglements of Rare Diseases in the Baltic Sea Region constitutes a unique and important contribution to both global medicine and social science scholarship.
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Bibliographic data
Copyright year
2023
ISBN-Print
978-1-6669-4238-5
ISBN-Online
978-1-6669-4239-2
Publisher
Lexington, Lanham
Language
English
Pages
214
Product type
Book Titles
Table of contents
ChapterPages
Contents No access
List of Tables and Figures No access
Acknowledgments No access
Introduction No access Pages 1 - 20
Matriarchal Management, Expert Caregiving, and Intensive Mothering among Mothers of Children No access Pages 21 - 46
Between Paternalism and Autonomy No access Pages 47 - 66
Food as Medicine No access Pages 67 - 88
Between Standard and Experimental No access Pages 89 - 112
Entangled and Layered Temporalities No access Pages 113 - 130
Health Emigration in Rare Disease No access Pages 131 - 166
“Are You a Disabled Person?” No access Pages 167 - 194
