Die Belastung und das Wohlbefinden bei der Pflege von Menschen mit Schwerbehinderung

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Cover of Volume: Behindertenpädagogik Volume 62 (2023), Edition 1
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Vierteljahresschrift für Behindertenpädagogik und Integration Behinderter in Praxis, Forschung und Lehre

Volume 62 (2023), Edition 1

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Psychosozial-Verlag, Gießen
Publication year
2023
ISSN-Online
0341-7301
ISSN-Print
0341-7301

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Volume 62 (2023), Edition 1

Die Belastung und das Wohlbefinden bei der Pflege von Menschen mit Schwerbehinderung

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Authors:
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ISSN-Print
0341-7301
ISSN-Online
0341-7301
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Caring for persons with multiple and profound disabilities, family members are exposed to a special burden and challenges. The aim of this study was to investigate the subjective burden of caring relatives of people with severe disabilities and the effects of caring on their subjective well-being. In particular, the aim was to find out whether, and to what extent, caregiving burden is compatible with the experience of well-being or not. The research study sample consisted of 549 »informal« caregivers, of which 292 were caregivers of people with disabilities and 257 were caregivers of people without disabilities. The results of the study showed the higher and lower levels of burden and well-being, respectively, of family caregivers of people with severe disabilities, compared to family caregivers of people without disabilities. The terms »burden« and »well-being« are usually treated as separate concepts in related studies of family caregivers. In this study, burden is also examined and analyzed in relation to feelings of well-being. The results show that family caregivers may be burdened, but at the same time experience equally high levels of satisfaction. Finally, the joint assessment of the dimensions of strain and well-being that coexist in the experience of family caregivers enables the identification of personal and social resources that can be incorporated into interventions targeting family caregivers.

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